Books And Films



A Resource Guide for Parents, Care-Givers & Professionals
Journey to Empowerment: A Roadmap for "Special Children" by
Kavita Shanbhag - +91 098202-56731, 08898785000.
Email - childraisetrust@gmail.com
Price: Rs.350 /-


English Books

Tornado - A parent manual to manage the ADHD child

By Mrs. Samindara Hardikar - Sawant, Illustrated by Ms. Kuntal Doshi by Disha Publication



Epilepsy In India
By B.S. Singhal and Devika Nag

This book has been published by Indian Epilepsy Association and Lenbrook Pharmaceuticals. This book contains information on diagnosis, management, social reforms and the provisions in the legal system and other issues, in relation to epilepsy in India.



'Take Me Out For Dinner Tonight'
By Dr.Ajay Sodani.

'Mirgi- Kuchh Kahaniya' & 'Mirgi ka Such'
By Dr.Shailendra Jain

What Am I
is based on the life of Siddhi Desai. The book is written by Vrinda Bhargava - a college teacher in Nasik. The book is hailed Inspirational by none other than our President-Pratibha Patil. She adds that Siddhi is a very brave girl & has fought like a warrior.Siddhi may not have eyesight but has vision. President hopes that all girls & boys grow up with her kind of ambition, courage & hope.

Beyond Those Walls of Silence
a real life experience of helping the deaf speak By Lalini Rajasuriya ( Amra Publishers-Chennai). A poignant story of a mother whose consistent love ,insight transformed profoundly deaf child Mahinda in to a robust & creative young man leading a normal life. The book is invaluable reading for all parents working with deaf children.

Journey Towards Promotion of Inclusive Education in India 
This book, published by he National Centre for Promotion of Employment for Disabled People (NCPEPP), documents a silent revolution: developments over  a period of only a few months but to have a deep impact on the education and therefore on the empowerment of India's 70 million disabled people.


From Darkness to Light,
By Dheera Kitchlu
Stories of uncommon courage of Blind Women Achievers. Published by National Association of Bild (NAB) and Committee for Achievement of the Status of Blind Women (CASBW) 
Note : Braille and audio versions available with NAB.

For a Secure Tomorrow,  Damodar Tilak
Help for Middle Income Group (MIG) families to adopt the small savings route to provide for the future financial needs of a child with disability.
(For the entire book, click on 'Financial Planning' on home page)

Read More

Conquering Epilepsy,  Carol D'Souza
Personal stories of people conquering Epilepsy: Finding the Rainbow after the storm
Read More

Autobiography of Susan Hampshire
Account by an actress with learning disabilities

Expect the Unexpected: My Dreams and How I Got There.
Autobiography by Larry Espling,  a person with cerebral palsy

Raymond's Room 
by Dale Dileo
www.raymondsroom.com
Dale calls people with disabilities as society's 'hidden citizens'.

Children and Learning Difficulties,    Onita Nakra  

No One's Perfect
by Hirotada Ototake, disabled author with tetra amelia, a condition where almost no arms or legs, wrote 'No One's Perfect' - an instant bestseller in Japan. He was appointed as a full time elementary teacher in Tokyo.

Children with Learning Difficulties - How to Help 
: A Guide for Parents & Teachers 
by Bela Raja, Published by Vakils, Rs. 295/- 

 

 


Marathi Books
AUTISM EK BIKAT VAAT TE VAHIVAAT

AUTISM EK BIKAT VAAT TE VAHIVAAT – is to understand, communicate and handle the child on diagnosis of Autism. The author Sunita S Lele explains in this book not only the experiences that she shared with all Autistic individuals but also writes the practical and theoretical method. Although, number of Autistic individuals is very large, this book is mainly for families and professionals working with children 8 to 9 years old of age.
This book is divided into three sections and priced at Rs. 230/-. Each section contains 4 to 5 topics explaining theoretical method and practical for self-study.
This book is available for purchase at:
Forum For Autism 
# 1, Sorab House 
6 Garden Road 
Colaba, Mumbai 400039
T. 022-32949595
Email: forumforautism@gmail.com


Andhlyache Dole
Writer - Ved Mehta , Translation - Shanta Shelke.
This is a translation of a book by Autobiography –face to Face of Ved Mehta. This is a very inspiring tale of a very determined Ved who has tremendous confidence, his intense search for knowledge & passion to live life to the fullest.

Ek Purna - Apurna by Neela Satyanarayan
Engaging travails of a high placed official who is a mother of Chaitanya - boy with Downs Syndrome. The book portrays stages from denial to acceptance.
Granthali Prakashan , Mumbai, Rs 125/- 

Jhunj Niyatishi by Pratibha Hampras 
Struggle of a Aurangabad based mother to raise a son with Cerebral Palsy 
Saket Prakashan, Rs 140/-

Aapli Mule Ka Bighadtat? by Dr. Anuradha Sovni & Madhuri Bhide.
Unmesh Prakashan, Rs 60/- 

Phite Andharache Jale by Bhalchandra Karmarkar
Struggle of Parents with their daughter Vallary- a girl with cerebral palsy, her progress and challenges.
Published by Mehta Publishing House Price- Rs. 120/- 

Shishir Palvi
Heart rendering experiences narrated by parents of special children.

Apwadatmak Mulanche Manas-shastra,   Prema Kale     


Braille, Audio Books

Marathi & English Cookery Books
Available in Braille by cookery expert Amar Rane, a person with disability himself. Audio cassettes are also available.

From Darkness to Light, by Dheera Kitchlu
Stories of uncommon courage of Blind Women Achievers. Published by National Association of Bild (NAB) and Committee for Achievement of the Status of Blind Women (CASBW) 
Note : Braille and audio versions available with NAB.

Magazines / Newsletters
Marathi Magazines

‘Shabd Deepotsav 2006’ Diwali Ank, edited by Meghana Pethe 
‘Aaglya Veglya Mulanna Wadhavtana’:  Section on Raising Different children having Special Needs. Articles by Pratima Joshi, Anil Joshi, Kavita Shanbhag, Smita Paranjpe and others.
 
Sadhana Saptahik June 10th 2006 issue
 Mulinche Ani Apanganche Shikshan Visheshank, Editor-Narendra Dabholkar
 
Lalana Diwaali Ank 2004:
Adhunik Mother - Kavita Shanbhag: articles on epilepsy
 
Sakal Diwali Ank 2004 : Maitri Epilepsy shi by Yashoda Wakankar-articles on epilepsy 

English Magazines

Parivaar
Quarterly newsletter by National Federation of Parent's Association (NFPA) for Person's with Mental Retardation, Autism, C.P. & Multiple Disabilities.

Sparsh Magazine
Sparsh is produced twice year by
Sense International(India),
2nd floor, Admin block,
opp. Indian Institute of Management (IIM),
Vastrapur, Ahmedabad-380015
Phone- 91-79-26301282,
Fax- 91-79-26301590

Disability World - www.disabilityworld.org
A bi-monthly web-zine of International Disability news & views.

Autism Network is published by Action For Autism.It's aim is to provide information on education,therapy,& care for people with autism.

Barrier Break Technologies have introduced a quarterly magazine named A3-Ability, Adaptability & Accessibility. It endeavours to provide information,tips & news.
Details - www.barrierbreak.com

Deaf Way-Monthly publication by Arun Rao & Christina Rao Parents of a deaf girl. Details log on to www.thedeafway.org. Ezine is available.

Karavalamban - NIMH newsletter. Their objective is to reach out to professionals,parents,NGOs with information on disability.

Neworld-Voice of Paraplegics newsletter towards an attempt to create a network & support to all SCI (Spinal Cord Injury),therapists,doctors,caregivers.ezine available.
Details - www.ninafoundation.org


Book Reviews


For a Secure Tomorrow
By Damodar Tilak

The National Trust has published, in public interest, a booklet under this title to help families in the middle income group (in particular) to adopt the small savings route to provide for the future financial needs of their disabled wards.

The booklet is authored by Damodar Tilak. He is the father of an only daughter who is a person with cerebral palsy and mental retardation.

In the words of Smt. Aloka Guha, Chairperson of the National Trust, the booklet describes personal experiences of Mr. Tilak and his own preferred solutions to the problems that he and his wife have faced. The publication and subsequent dissemination of these personal experiences is expected to help others to increase their range of options for securing a better, and safer future, for their children with disabilities.

For more information please contact:
Tel  : 91+11+3217411 - 13
Fax : 91+11+3217414 or
E-mail:
nationaltrust@ren02.nic.in


Journey to Empowerment:  A Roadmap for "Special Children", by Kavita Shanbhag

Foreword by Dr.Dharmishta Mehta
Reader, Special Education Dept. SNDT University, Mumbai.

This resource guide "Journey to Empowerment" serves as a light house 'amidst the unclear waters of ignorance, feeling of being lost, confused or unguided. Dissemination of information regarding certain handicapping conditions in simple words is effective in enabling people to understand the condition from all perspectives.

I wish all the best to the author in her endeavors and to the parents in their "special journey".

Review by Dr. Surekha Rajadhyaksha, (MD, DCH)
Consultant in Pediatrics & Pediatric Epilepsy, Deenanath Mangeshkar Hospital, Pune.


We, as young newly married couples are totally unprepared to bring up a normal baby. Through errors of commissions and omissions we manage to bring up our children to the best of our abilities. The challenge really arises in bringing up a special child. It teaches you patience, tolerance, empathy and draws us towards the Almighty.

Parents run from pillar to post to seek the right advice, follow it and wonder ‘are we doing the best for our child’. There are many who offer advise, sometimes wanted and often unwarranted. One wishes to have more authentic information. “ Journey to empowerment” is a resource guide compiled by Ms Kavita Shanbhag which provides the approach to the right track for help.

This is a book written from the heart of a mother, a special educator, a versatile creative mind who gives us enormous information. Some of the phrases used by Kavita are very apt. ‘Children are not disabled but differently abled’. As mentioned in the book, there are no short cuts. One has to seek advice from the right person and follow it to enable your child to be as independent as possible and try to make him a contributory member of society. The directory for education in integrated schools, special schools, slow learner schools, for children with motor disability, visual and the hearing impaired, NOS schools, vocational training centers, sheltered workshops etc may look exhaustive but such information is really essential as one should be practical and seek admission to a centre suitably situated near one’s residence. The book can be utilized by the health professionals also to guide the patient to a nearby center.

There are many aspects of legislation one is unaware of, such as monetary benefits, traveling concessions, tax benefits which one should honestly and rightfully utilize.

The book offers information which one should use to rise to the situation and find a path which will make a difference in upbringing your special child. The book is suitably complemented by the website which would be updated to provide the latest information in the field. The book is a must for all caretakers looking after the challenged child.





Films & TV Programmes

Top


Yellow


Yellow is an 2014 Marathi film directed by Mahesh Limaye and produced by Riteish Deshmukh and Uttung Thakur. The story explores a mother daughter relationship and developmental disability and behaviour of a child.

The directorial debut film is based on a true story of Gauri Gadgil, a special needs child, who also plays herself in the film. The film was released on 4 April 2014 to critical accalim. The film second film of actor Riteish Deshmukh as producer after Balak-Palak (2013).

At the 61st National Film Awards, it won the Special Jury Award, while the child actors Gauri Gadgil and Sanjana Rai received Special Mention.

My Name is Khan
Shah Rukh Khan is both excited and nervous about My Name is Khan, which, he believes, is his biggest film till date. Khan essays the role of Rizvan Khan who has Asperger's syndrome, a form of autism. "In Asperger's syndrome, one half of the brain is more developed than the other," he says, "So the person ends up thinking very logically as the emotional side is not completely developed. That's the reason Rizvan has problems socialising and is afraid of crowds. In fact, people having Asperger's often find it difficult to show any emotion."

Director Karan Johar and Khan spent several months researching people with Asperger's so that the actor could get the nuances right. "I began reading a lot of books. The Curious Incident of the Dog in the Night-time is one that I read several times. I watched a lot of videos and met several people with Asperger's," says Khan.

Johar spaced out the shooting so that the actor would have time to prepare himself for the scenes. "It took a lot of retakes to get everything perfect and I'm really thankful to Kajol and Karan for all their patience during the shoots," says Khan. The actor says that the movie is not a social-awareness film, "But I hope that it will bring about awareness of the problems that these people face in leading a 'normal' life," he says.

Natasha Sahgal - Indian Express

Bilal Available with distributors Magic Foundation (magiclantern.foundation@gmail.com) and with director and producer Saurav Sarangi (souravsarangi@gmail.com)
source- Indian Express
Aapki Antara Aapki Antra is a Zee TV soap opera which premiered on June 1, 2009. The story is about a young girl, Antara, who is diagnosed with autism and her journey of life.Watch Antara from Monday to Friday at 8.30 pm.
Black Directed by Sanjay Leela Bhansali, the film revolves around a deaf, blind & mute girl(played by Rani Mukherjee to perfection ), and her relationship with her teacher(Amitabh has surpassed himself in the teacher's role) who himself later suffers from Alzeimer's. The first half of the film is an adaptation of Helen Keller's autobiography.
Apna Asmman a film by Kaushik Roy
Yuvraj Subhash Ghai movie where Anil Kapoor plays an autistic brother to Salman Khan & Zayed Khan.
My name is King Karan Johar makes a movie in which Shahrukh Khan plays a person with Aspergers Syndrome.

Taare Zameen Par
Produced and directed by Aamir Khan, this is a brilliantly made movie which tells us about the world of children. Ishaan Awasthi, superbly portrayed by Darsheel Safary, is a boy in III std  who loves fishes, dogs and loves to paint. But at the same time he hates studies, struggles with reading, writing, spelling and maths. He is also clumsy, reverses alphabets and has bad handwriting. He is a puzzle for the teachers and a cause of worry for the parents. Nobody understands him; he is called lazy, idiot and so on. Finally he is sent to a boarding school in Panchgani. There he meets his art teacher Nikumbh (Aamir Khan) who understands that he has Dyslexia - Learning Disability, since he also has this condition . He resurrects his lost self esteem through art in which Ishaan is very good at.
 
The message is every child is unique with different strengths and weaknesses, and it is upon us as parents, teachers and society at large to discover their talents and nurture them. (January '08)
Hostel A short documentary film on eye donation.
Director:- Gajraj Rao
Producer: Subrat Ray.
You can watch this film on www.youtube.com and www.giftavision.com
Aamhi Asu Ladke
(Marathi Film)
Producer Director Abhiram Bhadkamkar has worked with the great sensitivity to put forward the lives of mentally challenged children. He has combined the storyline of a successful mother and her unsuccessful son burdened with expectations who comes across with these challenged children and how it changes his life for the better. The shooting has taken place at Chetna Apangmati Vikas Sanstha, Kolhapur.
Iqbal
Produced by Subhash Ghai and his company Mukta Films, Iqbal is the touching story of a deaf-mute boy (enacted by Shreyas Talpade) who dreams of making it to the Indian Cricket team. His father doesn't approve of his ambition but his mother and sister support him. And he finds unexpected help from an alcoholic coach (Naseerunddin Shah). Nagesh Kukunoor directs this simple, inspiring story supported by Girish Karnad and Shweta Prasad  
Tera Mera Saath Rahe
A sensitive film by Mahesh Manjarekar. A story of an elder brother with a younger mentally retarded brother to look after.
Forest Gump
An award winning film of a youth with cerebral palsy who makes it big.
Naache Mayuri

A life story of Sudha Chandran. Her triumph over destiny with the Jaipur foot.
Sparsh
Naseeruddin Shah portrays a blind person.
Koshish
The struggle of a hearing impaired couple and their victory over life.
Rainman The story of an adult who is autistic. The role is superbly portrayed by Dustin Hoffman.